Jane Smith, UMDF Toledo Area Mito Group Leader
Jane Smith, RN, PhD, United Mitochondrial Disease Foundation Mito Group Leader
Jane Smith, UMDF Toledo Area Mito Group Leader and mother to two children with MELAS- Michael- age 8 and Lola- age 4.
Jane Smith UMDF Toledo Area Mito Group Leader, Paper salesman for Dunder-Mifflin, and Metabolic Disorder Board Member
Names and contact information for local physicians and resources
A sympathetic ear
Medical Expert Advice on treatments that a parent or patient should try
Basic information and literature about mitochondrial disease
Pass along their contact information to the UMDF
Tell them to contact the UMDF
They don't really need to be connected with UMDF
Mail them a letter containing the UMDF's phone number
Stay on the phone with the person for as long as possible, even it it means being on the phone all night
Politely refer them to the UMDF national office at 1-888-317-UMDF or ask for their phone number and have a UMDF staff member call them back
Yell at them and then hang up
Resign form your role as a UMDF mito group leader and change your phone number.
Raise $1 million for research annually
Provide updates to national on local UMDF activities – either through email, quarterly reporting, or participating in conference calls. Participate in one or both of the following: respond to inquiries from local individuals and conduct one or more UMDF activities per year.
Quit his/her job to focus exclusively on the UMDF
Keep responding to inquiries anyway or hold the meeting regardless. No excuses.
Just ignore all calls and emails. They’ll stop eventually. If you don’t show up for an activity you planned, they’ll figure it out and go home.
Call or email the UMDF and let us know so we can temporarily remove your contact information from our website OR postpone/cancel your activity on your behalf.
Ask your mom to answer all calls OR run the activity planned.
Buy really expensive paper to print them on
Contact UMDF to see if they can assist with your planned mailing and email a copy them a copy of the flyer, letter or invitation to review.
Do nothing, Just go ahead and send it.
Treat it as confidential and not share it with anyone other than the UMDF or use it for any purpose other than UMDF activities
Sell it to the highest bidder
Distribute it to local organizations that you think may be able to help
Submit it for inclusion in the UMDF newsletter
How's it going, sweetie?
Hi, How are you?
Invite them over to your home for food and drinks
Meet in a public place and bring along a friend or fellow UMDF member
Get directions and visit them at their home
Awareness activities (presentations as schools, churches, social clubs, city council meetings, etc.)
Formal or informal meetings with affected families in your area.
Promoting national advocacy efforts
All of the above